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Family set to raise cash for Cystic Fibrosis Trust

By Cornish Guardian  |  Posted: March 15, 2014

  • SUPPORT: Jenny Green, with her sons Louis and Jago, and left, the boys jumping for joy.

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THE MOTHER of two little boys from Newquay, who suffer from an incurable lung disease, is urging people to support their bid to raise money for charity.

Nine-year-old Louis Green and seven-year-old Jago both have cystic fibrosis, a life-limiting genetic condition in which the lungs and digestive system become clogged with a thick, sticky mucus.

Mum Jenny Green has arranged a number of events to raise awareness about the illness and to collect donations for the Cystic Fibrosis Trust to mark its 50-year anniversary.

Louis and Jago are preparing to compete in a mini-triathlon on Saturday, April 5. During the event, the pair – and some friends from school – will swim 26 lengths at Wadebridge swimming pool, cycle 2.6 miles along the Camel Trail, then run 2.6 miles, finishing in Padstow.

Ms Green will also run the London Marathon on April 13, and has organised a family yoga session at Treviglas Sports Hub on March 16 to raise cash.

"It's nice to create awareness of cystic fibrosis," said Ms Green. "People have heard of it, but don't really know much about the illness, and it can be quite a lonely, isolated world for people with it.

"The boys have to nebulise three to five times a day, they have 30-40 tablets a day, and three lots of physiotherapy a day, but with both of them having it it's the norm in our house. As soon as they get up, it's part of our routine.

"I have to be there to administer their medicine so it's challenging. I try to keep the cystic fibrosis in a box, and try not to let it affect their lives."

One in 20 people are reported to carry the cystic fibrosis gene, and if both parents are carriers there is a one in four chance their children will have the condition.

Ms Green, a former lecturer at Truro College, made the difficult decision to become a full-time carer for her sons.

"I was a course leader, and worked with people with learning disabilities, so I had quite a responsible job, but cystic fibrosis is a life-limiting illness and I thought, 'the more I can do now, the longer they'll survive'," she said.

Louis and Jago study in years three and four at St Columb Minor Academy. Jago was first to be diagnosed when he was just three years old. Louis was also found to have liver disease.

"Jago manages quite well, but Louis can sometimes struggle because his liver's quite poorly. It affects all of his vital organs," she said.

"I'm very proud of them – they do as much as they can, and have lots of very supportive friends, close friends who help them along the way," she added.

To find out more about the family's fundraising events, or to make a donation, visit: virginmoneygiving.com and search for Jenny Green's 'Greens do 26.2' page.

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