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Gift has meant a new life for Sean

By Cornish Guardian  |  Posted: September 11, 2013

  • ------ Sean Hambly sits proudly on his new bed

  • ------ Mum Fran, Sean and dad Mike

  • SAFE SPACE: Sean Hambly, centre, on his new bed with his parents Frances and Mike at their home in Vivian Road.

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A ST BLAZEY school pupil who suffers from a range of medical conditions has had his life transformed after the donation of a specialist bed to help him sleep at night.

Sean Hambly, 12, who attends Doubletrees School, has cerebral palsy, global developmental delay, epilepsy and renal failure.

He suffers from a chronic sleep disorder and has no awareness of danger, and like other people with similar conditions has a tendency to faecal smearing which has cost the family hundreds in redecorating costs and hours of sanitising.

Parents Mike and Frances Hambly, from Bodmin, said Sean would often run around the house at night, putting himself and their four other children at risk, and had even been found one night covered in blood after playing with a broken light bulb.

Now, however, he can sleep safe and sound after the family was given a specialised, high-sided bed by the Newlife Foundation for Disabled Children.

"It's unbelievable how much difference this bed has made to our lives," said Mrs Hambly.

"Sean had managed to slip through the system and so we didn't know that his behaviour's normal for children with his condition.

"Sean sleeps better in an enclosed space and so the bed's ideal for him.

"He'll now put himself to bed because he feels comfortable and safe in his own personal space and if he's feeling tired or upset during the day then he'll go off to his bed for a rest.

"Sean wakes up about 3am every day. Now he knows he can't get up and run around so he eventually goes back to sleep without trashing his bedroom first.

"It helps enormously with Sean's safety and wider family health issues."

The new bed, worth more than £5,000, restricts Sean to a safe padded environment which is easy to clean.

The Hamblys started desperately searching for a solution after Sean's light bulb accident but after finding out about the specialist bed were told that local statutory services wouldn't fund equipment of this sort.

After also being turned down by numerous other charities, they eventually contacted the Newlife Foundation, and within weeks of the initial call they took delivery of the bed.

The foundation is a national children's disability charity which provides a range of practical services including equipment grants.

In the first half of 2013 alone, Newlife funded specialist equipment for 601 disabled and terminally ill children across the UK at a cost of more than £950,000.

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